Research Online

Logo

Goldsmiths - University of London

The effects of cancer research participation on patient experience: a mixed-methods analysis.

McGrath-Lone, Louise; Ward, Helen; Schoenborn, Claudia and Day, Sophie E.. 2015. The effects of cancer research participation on patient experience: a mixed-methods analysis. European Journal of Cancer Care., 15, ISSN 0961-5423 [Article]

[img]
Preview
Text (The effects of cancer research participation on patient experience: a mixed-methods analysis.)
McGrath-Lone_et_al-2015-European_Journal_of_Cancer_Care.pdf - Published Version
Available under License Creative Commons Attribution.

Download (377kB) | Preview

Abstract or Description

Patient-reported benefits of research participation have been described by study participants; however, many studies have small sample sizes or are limited to patient groups with poor prognoses. The purpose of this study was to explore the effects of research participation on patient experience using survey responses from a large, national sample of cancer patients (N = 66 462) and interviews with breast cancer patients attending a London trust. Multivariate logistic regression was used to investigate associations between taking part in research and positive patient experience. Based on our analysis, patients who participated in research were more likely to rate their overall care and treatment as 'very good/excellent' (ORadj :1.64, 95%CI: 1.53-1.76, P < 0.001) and to describe positive patient experiences, such as better access to non-standard care, better interactions with staff and being treated as an individual. However, findings from our interviews indicated that there was no common understanding of what constitutes cancer research and no clear delineation between research participation and standard care, from the patient perspective. Further work to explore how participation positively influences patient experience would be useful to develop strategies to improve care and treatment for all patients regardless of whether or not they choose, or have the opportunity, to take part in research.

Item Type:

Article

Identification Number (DOI):

https://doi.org/10.1111/ecc.12336

Keywords:

cancer, patient experience, research participation.

Departments, Centres and Research Units:

Anthropology

Dates:

DateEvent
27 April 2015Accepted
10 June 2015Published

Item ID:

18986

Date Deposited:

29 Sep 2016 14:05

Last Modified:

10 Jul 2018 02:12

Peer Reviewed:

Yes, this version has been peer-reviewed.

URI:

http://research.gold.ac.uk/id/eprint/18986

View statistics for this item...

Edit Record Edit Record (login required)