Surveying parental experiences of receiving a diagnosis of developmental coordination disorder (DCD)

Alonso Soriano, C; Hill, Elisabeth L. and Crane, Laura. 2015. Surveying parental experiences of receiving a diagnosis of developmental coordination disorder (DCD). Research in Developmental Disabilities, 43-44, pp. 11-20. ISSN 0891-4222 [Article]

[img]
Preview
Text
Alonso Hill & Crane RIDD 2015.pdf - Accepted Version
Available under License Creative Commons Attribution Non-commercial No Derivatives.

Download (207kB) | Preview

Abstract or Description

Receiving a diagnosis of a developmental disorder has a major impact on an individual and their family. However, little is known about parental experiences of having a child diagnosed with developmental coordination disorder (DCD). In this study, 228 parents completed an online survey about their experiences of obtaining a diagnosis of DCD for their child in the United Kingdom. Results demonstrated that, on average, a diagnosis was confirmed two and a half years after parents initially sought professional help in relation to their child’s motor difficulties. Satisfaction with the overall diagnostic process was mixed: 45% of parents were dissatisfied (26% = very dissatisfied, 19% =quite dissatisfied) and 39% were satisfied (16% =very satisfied, 23% = quite satisfied). Four factors were predictive of parental satisfaction with the overall diagnostic process: the stress of the diagnostic process; the manner of the diagnosing professional; satisfaction with post-diagnostic support; and the time taken to get a diagnosis. Post-diagnostic provision was the area in which parents reported most dissatisfaction; an unsurprising finding given that 43% of parents were not offered any practical help or support during the diagnostic process or in follow up appointments (although there was an indication that this was improving). Based on these findings (as well as previous research), we propose three key areas in which improvements in the diagnostic process for DCD are needed: (1) Greater awareness about DCD in order to facilitate earlier recognition; (2) Implementation of clear referral pathways, to reduce the time taken to receive a diagnosis; and (3) Increased post-diagnostic support within health and educational systems.

Item Type:

Article

Identification Number (DOI):

https://doi.org/10.1016/j.ridd.2015.06.001

Keywords:

Developmental Coordination Disorder, dyspraxia, diagnosis, parents, experiences, satisfaction

Departments, Centres and Research Units:

Psychology

Dates:

DateEvent
1 August 2015Published
4 July 2015Published Online
1 June 2015Accepted

Item ID:

11916

Date Deposited:

02 Jul 2015 10:18

Last Modified:

29 Apr 2020 16:11

Peer Reviewed:

Yes, this version has been peer-reviewed.

URI:

https://research.gold.ac.uk/id/eprint/11916

View statistics for this item...

Edit Record Edit Record (login required)