Justice in the genomic and digital era: a ‘different world’ requiring ‘different law’

Selita, Fatos. 2020. Justice in the genomic and digital era: a ‘different world’ requiring ‘different law’. Legal Issues Journal, 8(1), pp. 55-70. ISSN 2516-1210 [Article]

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Abstract or Description

Discoveries in the last two decades have created a ‘different world’, which requires ‘different’ laws. They have created a world where: enormous in- formation on people’s past, present and future can be extracted from DNA alone; the DNA of millions of people has already been sequenced; the cost of sequencing is around 30 million times less than in 2003; additional detailed personal information is collected from numerous sources, such as mobile phones, hospitals, bank cards; this information is shared internationally among numerous powerful private and State organisations; and use of this information can be highly profitable for these organisations. Under these conditions, current law is unable to fully protect rights such as that of data protection, privacy, a fair trial, and non-discrimination on genetics and other basis – rights valued by societies. For the law to serve its key purpose, it now must adapt (evolve) to this fast and fundamental change in the ‘environment’. In relation to protection from data misuses, as privacy (genetic and other) is not possible, laws are required which can minimise negative impact of data misuses. Key stakeholders (e.g. judges, policymakers) would need to understand how genes work and how genetic information is used in order to appreciate the urgency of updating laws and to build effective protection.

Item Type:

Article

Additional Information:

Selita, F. 2020. Justice in the genomic and digital era: a ‘different world’ requiring ‘different law’. Legal Issues Journal, 8(1), 55-70.

Source data for the figures of the article -
DOI: 10.6084/m9.figshare.11776674

Keywords:

genetic privacy, genetic discrimination, digital era, genomic laws, genetic data protection, genetic risks, genetics and justice

Related URLs:

Departments, Centres and Research Units:

Psychology

Dates:

DateEvent
26 January 2020Published
10 January 2020Accepted

Item ID:

28154

Date Deposited:

31 Jan 2020 15:46

Last Modified:

29 Apr 2020 17:25

Peer Reviewed:

Yes, this version has been peer-reviewed.

URI:

http://research.gold.ac.uk/id/eprint/28154

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