The Gardener and the Walled Garden

Day, Sophie E.; Smith, Jayne and Ward, Helen. 2022. The Gardener and the Walled Garden. In: Celia Lury; William Viney and Scott Wark, eds. Figure: Concept and Method. Singapore: Palgrave Macmillan, pp. 149-172. ISBN 9789811924750 [Book Section]

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Abstract or Description

This chapter explores the close connections between health care and research in a London hospital through Jayne’s - one of the authors – experiences. We are an anthropologist (Sophie Day), a patient with breast cancer (Jayne Smith) and a clinical epidemiologist (Helen Ward) with different positions in this research hospital and different perspectives on experimental cancer care (Day et al. 2021). The first-person plural that we adopt therefore shifts in its referents. The letter from Jayne (below) shows that she wanted to know whether the samples she contributed to several medical research studies were useful and what had come of, and from, them. Strict governance of health data precluded Jayne from finding out herself, but Sophie and Helen had university positions that allowed them to cross garden walls into what are called Trusted Research Environments.

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Book Section

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Participation, Biobanking, Breast cancer, Biomedicine, Data

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9 December 2021Accepted
27 October 2022Published

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Date Deposited:

21 Jan 2022 11:59

Last Modified:

24 Nov 2022 21:23


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