Moral Tales: Interviewing parents of congenitally ill children
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Baruch, Geoffrey Frank. 1982. Moral Tales: Interviewing parents of congenitally ill children. Doctoral thesis, Goldsmiths, University of London [Thesis]
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Text (Moral Tales: Interviewing parents of congenitally ill children)
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Abstract or Description
The thesis is a sociological study of parents' responses to congenital illness in their child. The parents of 27 children suffering either from congenital heart disease or a cleft palate/ hare lip were administered semi-structured, tape-recorded interviews in their home following each outpatient and inpatient contact and also in hospital during the child's inpatient stay. The thesis critically examines psychological, psycho-analytical and sociological explanations of parents' responses. Following arguments developed by Voysey (1975), these responses are treated as situated accounts constructed for the research interview which display the respondent as a morally adequate parent. The normative character of the accounts is demonstrated by a crude quantitative application of Sacks' analysis of descriptions (Sacks 1972). The results support the qualitative analysis of a number of topics. These include parents' responses to health professionals, to a disfigured baby and to child-rearing and their interpretations of the causes of the illness. Close attention is paid to the construction of accounts, particularly the role of the interviewer in this process. Policy implications are derived from the analysis which, unlike those based on a psychiatric model, seek to introduce organizational structures consistent with the moral order of parents and staff. The working of a clinic intervention study is described. Finally, the thesis suggests implications of the research for interview studies of familial responses to other medical conditions including 3 mental illness and serious adult illnesses.
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Item Type: |
Thesis (Doctoral) |
| Identification Number (DOI): |
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| Keywords: |
parents, congenital illness, heart disease, quantitative analysis, the role of the interviewer |
| Date: |
1982 |
| Item ID: |
33729 |
| Date Deposited: |
05 Jul 2023 12:01 |
| Last Modified: |
05 Jul 2023 14:34 |
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URI: |
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