In search of a ‘good number’: knowledge controversy and population estimates in the endgame of hepatitis C elimination

Rhodes, Tim; Lancaster, Kari and Adams, Sophie. 2024. In search of a ‘good number’: knowledge controversy and population estimates in the endgame of hepatitis C elimination. BMJ Global Health, 2024(9), e014659. ISSN 2059-7908 [Article]

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Abstract or Description

We explore the contentious life of a metric used to assess a country’s progress in relation to global disease elimination targets. Our topic is hepatitis C elimination, and our context is Australia. A fundamental metric in the calculation of progress toward hepatitis C elimination targets, as set by the WHO, is the population prevalence of people living with hepatitis C. In Australia, this modelled estimate has generated some controversy, largely through its repeated downsizing as an effect of calculus. The 2015 baseline population estimate in Australia, from which measures of current elimination progress are assessed, has reduced, over time, by around 30%. Informed by a social study of science approach, we used qualitative interviews with 32 experts to explore the knowledge controversy. The controversy is narrated through the core concerns of ‘scale’ and ‘care’, with narratives aligning differently to imaginaries of ‘science’ and ‘community’. We trace how constitutions of ‘estimate’ and ‘number’ circulate in relation to ‘population’ and ‘people’, and as affective values. We show how enactments of estimates and numbers materialise hepatitis elimination in different ways, with policy implications. The event of the knowledge controversy opens up the social and political life of enumerations—for science and community—inviting deliberation on how to make ‘good numbers’ in the race to eliminate hepatitis C.

Item Type:

Article

Identification Number (DOI):

https://doi.org/10.1136/bmjgh-2023-014659

Additional Information:

Funding This project is supported by an Australian Research Council Discovery Project (DP210101604) and DECRA (DE230100642). We are grateful for support from the UNSW SHARP (Professor Tim Rhodes) and Scientia (Associate Professor Kari Lancaster) schemes.

Data Access Statement:

All data relevant to the study are included in the article or uploaded as supplementary information.

Departments, Centres and Research Units:

Sociology

Dates:

DateEvent
19 January 2024Accepted
27 February 2024Published Online
29 February 2024Published

Item ID:

36364

Date Deposited:

20 May 2024 14:26

Last Modified:

20 May 2024 14:26

Peer Reviewed:

Yes, this version has been peer-reviewed.

URI:

https://research.gold.ac.uk/id/eprint/36364

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