Goldsmiths - University of London

Experiences of receiving a diagnosis of autism spectrum disorder: A survey of adults in the United Kingdom

Jones, L; Goddard, Lorna; Hill, Elisabeth L.; Henry, L and Crane, Laura. 2014. Experiences of receiving a diagnosis of autism spectrum disorder: A survey of adults in the United Kingdom. Journal of Autism and Developmental Disorders, 44(12), pp. 3033-3044. ISSN 0162-3257 [Article]

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Abstract or Description

A total of 128 adults with high-functioning autism spectrum disorders (ASD) were surveyed concerning the process they went through to obtain their diagnosis and the subsequent support they received. Results suggested that routes to diagnosis were quite heterogeneous and overall levels of satisfaction with the diagnostic process were mixed; 40% of respondents were ‘very/quite’ dissatisfied, whilst 47% were ‘very/quite’ satisfied. The extent of delays, number of professionals seen, quality of information given at diagnosis and levels of post-diagnostic support predicted overall satisfaction with the diagnostic process. Important areas and suggestions for improvement were noted for all stages of the diagnostic pathway. Finally, respondents displayed above average levels of depressed mood and anxiety, with greater support being requested in this area.

Item Type: Article

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Additional Information:

The research presented in this article was funded by a Small Grant from the British Academy (SG112070)


diagnosis; survey; adults; depression; anxiety

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June 2014Published

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Date Deposited:

16 Jun 2014 09:11

Last Modified:

14 Jul 2018 17:35

Peer Reviewed:

Yes, this version has been peer-reviewed.

URI: http://research.gold.ac.uk/id/eprint/10384

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